NEW FUNDRAISER FOR NEMALINE MYOPATHY
Last July 18th, our website was 22 years young! So I celebrated by doing "a thing" with the assistance of MDUK. Donations can be made in many currencies. Or choose UK£ and your bank will be the conversion for a small fee.
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Created 1999
For 18 years I have been a part of a very special family. This is not a family of blood relation, but a family that shares similar genes. A family that doesn't live in the same town, state or even country most of the time, but talk more than neighbors. A family that shares triumphs, sorrow, goals, laughs, tear, questions, support and love. And family that I have turned to many times over the past 18 years.
Thank you David McDougall for starting this just weeks before our girl was born. Somehow you knew I would need this for all those years and many more
to come. Love my NM family. Happy 18th Birthday!!
Amy Beffa Rhodes
NM Support Group is a member of Genetic Alliance UK