The website and the people with the knowledge you need.


The only regulary updated website for nemaline myopathy
.

Born: July 18, 1999

Updated: August 29, 2014


NM Support Group is a member of Genetic Alliance UK



Email Chat Groups

Active Family Discussion Group
220+ families sharing advice and experiences
in a more private group.



Sporadic Late (Adult) Onset NM
Espana egroup por MN

Twitter





Facebook
Nemaline Myopathy Support Group
A very helpful worldwide network
where family and friends can join
.
Nemaline Myopathy teens / young adults

Miopatia Nemalinica - (Portuguese, Italian, Spanish)
Nemalinmyopati NORDEN
Nemaiinikappaleet - Finland
(Japanese) - Facebook group

Miopatía Nemalínica España
Nemaline Myopathie Support - Deutschland




Plant a tree for NMSG
Purchase a tree to dedicate to anyone with NM and help us raise funds for our next convention.


Introductions
Research
Resources
Miscellaneous

Welcome Introduction (Nov. 27)
Deutsche
Espana
(June 15)
Francais (July 19)
Italiano
Other languages (Dec. 21)

Meet the website creator
(Jan. 16)

What is NM?
(Feb. 13)

NM Family Contact Register (Jan 30)
Contact me to be added to the 850+ members from 52 countries around the world. I may know someone near you!

Genetic testing (June 17
Dr. A. Beggs
(April 29)

Prof. N. Laing (Jan. 1)
Prof. K North (Jluy 2)
Assoc. Prof. Ottenheijm (Nov. 19)
Dr. C. Wallgren-Pettersson (Nov. 19)
Research projects (May 22)
ENMC (Nov. 19)
Science papers online (Nov. 19)
CMD International Register (Feb. 27)
A Foundation Building Strength (Feb. 13)
L-tyrosine (July 2)

Click here to take a genetics quiz!

Gene Express (Feb. 28)

Advice (March 29)
Explaining things (webs & webinars)
(Feb. 10)
Therapies & Personal Development (May1)
Professional and medical contacts (Aug. 17)
Patient care (Nov. 18)
Pregnancy in women with NM (Dec. 28)
Webpage for SLONM (Oct. 4)

Retailers/Suppliers (Aug. 24)
Travel/Holiday/Insurance advice (Aug 6)
Emergency lists for travel
Drugs and supplements (Aug 25)

NM Support Group (NMSG) (Mar. 20)
NM Foundation
(Aug. 25)

Publications (Feb. 10)
Original NM Newsletter #1
Original NM Newsletter #2
Everybody's Different

Relaunched NM Newsletter

 



This page was last updated: August 29, 2014
© David McDougall. 1999-2014
Contact: davidmcd_@hotmail.com. All received emails will be answered. (Please quote Nemaline Myopathy in the subject line.)


Disclaimer
This web site is here as a starting point for anyone seeking more information about nemaline myopathy and contacting other families whose lives are effected by it. The details provided and linked to this site are for information purposes only. All information is provided in good faith and with the understanding that I do not offer medical or professional services, of any kind. It is recommended that you should not use the information without consulting your doctor. No warranties of any kind, are expressed or implied. I do not accept liability for any loss or damage resulting from the use or misuse of any info contained on this site, nor for any errors or omissions. Basically, use this site at your own risk! Surfing this website can seriously increase your knowledge of NM. ;-)

This is NOT a medical site. It is intended for informational purposes only. Please contact your medical professional if you have questions about your specific condition.

Links on this site have been included as areas of possible interest. I cannot vouch for the accuracy or suitability of information you may find on them, or on sites linked to them. Information may concern prognoses and must be treated with sensitivity. Be VERY wary of any site that offers treatment or cures and always ask for independent, professional medical advice before you contact a site of this type. If you are not medically qualified and find an item that worries you please discuss it with your doctor.