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NEW FUNDRAISER FOR NEMALINE MYOPATHY
Last July 18th, our website was 22 years young! So I celebrated by doing "a thing" with the assistance of MDUK. Donations can be made in many currencies. Or choose UK£ and your bank will be the conversion for a small fee.
Please share across planet Facebook. You could also copy the link to your emails, Twitter, Instagram, and favourite social media platform. Thank you!.
David
The website and the people with the knowledge you need.
Created 1999
July 2017
For 18 years I have been a part of a very special family. This is not a family of blood relation, but a family that shares similar genes. A family that doesn't live in the same town, state or even country most of the time, but talk more than neighbors. A family that shares triumphs, sorrow, goals, laughs, tear, questions, support and love. And family that I have turned to many times over the past 18 years.
Thank you David McDougall for starting this just weeks before our girl was born. Somehow you knew I would need this for all those years and many more
to come. Love my NM family. Happy 18th Birthday!!
Amy Beffa Rhodes
The original website for nemaline myopathy
NM Support Group is a member of Genetic Alliance UK