Nemaline Myopathy Support Group
image The original community for NM

The website and the people with the knowledge you need.

Created 1999

July 2017

For 18 years I have been a part of a very special family. This is not a family of blood relation, but a family that shares similar genes. A family that doesn't live in the same town, state or even country most of the time, but talk more than neighbors. A family that shares triumphs, sorrow, goals, laughs, tear, questions, support and love. And family that I have turned to many times over the past 18 years.
Thank you David McDougall for starting this just weeks before our girl was born. Somehow you knew I would need this for all those years and many more to come. Love my NM family. Happy 18th Birthday!!

Amy Beffa Rhodes

The original website for nemaline myopathy

NM Support Group is a member of Genetic Alliance UKimage




Hebrew NM Group

Shaina Miriam Lent created the group. It is called "Nemaline Myopathy Israel".

Hi everyone! Just opened a nemaline myopathy group for hebrew speaker in Israel. Hope you find it useful. I will be translating important info from here to there.