Nemaline Myopathy Support Group

Introductions

Welcome Introduction

Welcome to the nemaline myopathy (NM) website, the first and most comprehensive resource for NM on the net. We hope that you will find support here whether you are the parent of a newly diagnosed child, a teenager with NM looking for peers to chat with, or an adult who has been living with NM for many years.

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What is nemaline myopathy?

First described in 1963, nemaline myopathy is a disease of voluntary muscle that is often nonprogressive. The most common form of the disease is not fatal, although a rare form of the disorder is. Why is it called nemaline myopathy?

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Meet the website creator

My name is David McDougall and I live near Edinburgh, Scotland. I was born in 1964 and diagnosed with NM at age 2. When I began surfing the internet in January 1999, I knew nothing of nemaline myopathy other than my own experiences.

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Nemaline Myopathy Support Group

The NM Support Group was created to raise awareness of nemaline myopathy and help families dealing with it on a daily basis. NMSG has not yet gone as far as becoming a registered charity.

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NM Register

From the day I created the Yahoo chat group and this website in 1999, I have kept a record of all the people who have contacted me. It has become a valuable resource for me to refer to when people ask if I know of others in their country, state or region. Other uses are, letting people know about planned NM meetings, fundraising events etc.

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Plant a tree for NMSG

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Purchase a tree to dedicate to anyone with NM.

Planting a tree is a great way to mark an occasion or to remember a loved one. I am offering people the opportunity to plant a tree in celebration of a family member or friend with nemaline myopathy and at the same time raise funds for the Nemaline Myopathy Support Group.
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