Introductions
NM Register
From the day I created the Yahoo chat group and this website in 1999, I have kept a record of all the people who have contacted me. It has become a valuable resource for me to refer to when people ask if I know of others in their country, state or region. Other uses are, letting people know about planned NM meetings, fundraising events etc.
The information I collect are; Contact name, email address, name of person with NM, city, age/dob, sex, form of NM, medical equipment used, misc. All data is optional, but the more you supply the more helpful it is. None is ever passed to anyone else without prior consent. If you would like to be added to my registry database, then please contact me for more details.
More recently I also started mapping people on Google Earth's virtual globe.
Yours sincerely,
David (davidmcd_@hotmail.com)
Plant a tree for NMSG
Purchase a tree to dedicate to anyone with NM and help us raise funds for our next convention.
Planting a tree is a great way to mark an occasion or to remember a loved one. I am offering people the opportunity to plant a tree in celebration of a
family member or friend with nemaline myopathy and at the same time raise funds for the Nemaline Myopathy Support Group.
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