Nemaline Myopathy Support Group

Miscellaneous

Nemaliners in the news

Email me to be added to the table or to contact anyone for more info.

Name  
Country
 
Media
  Outline   Date
                 
Brylee Bradford   USA   My Fox Atlanta   New parents dealing with severely disabled baby.   2013
Chloe Ball-Hopkins   UK   BBC News
Gazette
  Gloucestershire wheelchair player to toss Wimbledon coin
Wheelchair tennis and wheelchair racing
  2011

2010
Emmett Fuerst   Canada   United Way Winnipeg   Watch a video of Emmett playing powerchair hockey   2009
Drew Potenti   USA   Vector magazine   Interesting article about Dr. Alan Begg's Lab and all the genetics at Children's Hospital, Boston. Just hit NEXT until the picture of Drew and her mom April in the bathtub come up and hit read more.   2009
Dean Brooks   UK   Newspaper   Fundraiser in honour of Dean.   Aug. 2008
Bradley Walker   USA   Quest magazine   A little bit country.   May 2006
Wesley McHugh   USA   Quest magazine   Kids @ play.   Nov. 2006
Jim Parton   USA   Quest magazine   No more pencils and paper.   March 2003
Christian Smith   USA   Quest magazine   Uncertain futures, unexpected rewards: Coping with neuromuscular disease in infants.   June 2001
Brent Kurtz   USA   Quest magazine   Off the vent and yearning to learn.   June 2001
Brent Kurtz   USA   Quest magazine   High tech babies, hands-on coping.   Feb. 2000

Plant a tree for NMSG

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Purchase a tree to dedicate to anyone with NM and help us raise funds for our next convention.

Planting a tree is a great way to mark an occasion or to remember a loved one. I am offering people the opportunity to plant a tree in celebration of a family member or friend with nemaline myopathy and at the same time raise funds for the Nemaline Myopathy Support Group.
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