Nemaline Myopathy Support Group

Resources

Professional and medical contacts

CANADA

Having your child diagnosed with nemaline can be a devastating time. It is important to discuss future health and care issues. The following people can help advise you. All names below are given by families who have dealt with the people listed. Please advise me if you find these details out of date.

Ontario

Disclaimer

The following contact details have been collected from members emails in the nemaline myopathy chat group. It cannot be assured that any of the people are still at the given address.

Financial Assistance

Disclaimer

The following contact details have been collected from members emails in the nemaline myopathy chat group. It cannot be assured that any of the people are still at the given address.






















Plant a tree for NMSG

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Purchase a tree to dedicate to anyone with NM and help us raise funds for our next convention.

Planting a tree is a great way to mark an occasion or to remember a loved one. I am offering people the opportunity to plant a tree in celebration of a family member or friend with nemaline myopathy and at the same time raise funds for the Nemaline Myopathy Support Group.
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