Nemaline Myopathy Support Group

Resources

Melonie's page

The videos below are made by Melonie who has two girls with nemaline myopathy. Melonie points out that she has had training from qualified hospital staff, but does not recommend you try these treatments and exercises at home without consulting your own professionals. These are what works for Melonie and her girls. They may not work for you. Or perhaps a modified version would. Please seek professional advice.

  • Video 1
    Percussion, suctioning and re-inflating a young childs lung.
    (11 minutes)
    © Melonie D 2015

Plant a tree for NMSG

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Purchase a tree to dedicate to anyone with NM and help us raise funds for our next convention.

Planting a tree is a great way to mark an occasion or to remember a loved one. I am offering people the opportunity to plant a tree in celebration of a family member or friend with nemaline myopathy and at the same time raise funds for the Nemaline Myopathy Support Group.
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