Nemaline Myopathy Support Group

Resources

Retailers and suppliers

Medical

Disclaimer

Please email any recommendations or report broken links to davidmcd_@hotmail.com.
I personally do not have any financial connection with these companies.

Ventilators, Accessories, Breathing assistance

Disclaimer

Please email any recommendations or report broken links to davidmcd_@hotmail.com.
I personally do not have any financial connection with these companies.

Masks & head straps

Disclaimer

Please email any recommendations or report broken links to davidmcd_@hotmail.com.
I personally do not have any financial connection with these companies.

Monitors

Disclaimer

Please email any recommendations or report broken links to davidmcd_@hotmail.com.
I personally do not have any financial connection with these companies.


Suction machines

Disclaimer

Please email any recommendations or report broken links to davidmcd_@hotmail.com.
I personally do not have any financial connection with these companies.

Trache info

Disclaimer

Please email any recommendations or report broken links to davidmcd_@hotmail.com.
I personally do not have any financial connection with these companies.

Feeding tubes, foods, nutrition, and vitamins

Disclaimer

Please email any recommendations or report broken links to davidmcd_@hotmail.com.
I personally do not have any financial connection with these companies.

  • www.childlife.net Vitamin C
  • Abbott Store Internet supplier for Pediasure/Ensure etc.
  • Abbott Limited UK Manufacturer of Pediasure foods. Telephone: +44 (0)1628 773 355
  • Thermomix Recommended food processor for those using g-tubes. (UK website)
  • Flocare Infinity feeding pump.
    We use the flocare infinity pump. (I think they come under various names the one we have comes from nutricia). They are good because they are very small and easy to carry around.
    Darren
  • The AMT G-Jet Button is an American product.
    This AMT G-Jet button is simply fantastic!
    Sheila

Books

Disclaimer

Please email any recommendations or report broken links to davidmcd_@hotmail.com.
I personally do not have any financial connection with these companies.

  • Noninvasive Mechanical Ventilation by John R. Bach, MD.
    This book describes the use of inspiratory and expiratory muscle aids....
    Recommended

















Plant a tree for NMSG

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Purchase a tree to dedicate to anyone with NM and help us raise funds for our next convention.

Planting a tree is a great way to mark an occasion or to remember a loved one. I am offering people the opportunity to plant a tree in celebration of a family member or friend with nemaline myopathy and at the same time raise funds for the Nemaline Myopathy Support Group.
Learn more »»