Sitemap

This site map is a textually organized model of this site's content that allows the users to navigate through the site to find the information they are looking for, just as a traditional geographical map helps people find places they are looking for in the real world.

• Home
• Introductions
• Welcome Introduction
• NM Support Group (NMSG)
• What is nemaline myopathy?
• NM Register
• Meet the website creator
• Research
• Dr. Alan Beggs (USA-MA-Boston)
• Prof. Nigel G. Laing (Australia)
• Prof. Kathryn North (Australia)
• Dr. Carina Wallgren-Pettersson MD. (Finland)
• Associate Prof. Coen Ottenheijm (The Netherlands)
• Gene Express (Genetic testing)
• Call for patients
• European NeuroMuscular Center (ENMC) (The Netherlands)
• Scientific papers
• Useful Links
• Fundraising
• Plant a tree
• Trees planted in 2012
• Trees purchased and planted in 2013
• Trees will be ready to plant in 2014
• Trees that should be ready to plant in 2015
• Majeda Qasem's page
• Resources
• Starting out with NM
• Diagnosis - What Can I Do? - Before a medical appointment - During the appointment - After the appointment
• Keeping Notes - Forming Partnerships - Starting Out
• Physical Development
• Beginners Guide to Explaining things
• Resource Links
• Everybody's different, nobody's perfect
• Therapies & Personal Development
• Respiratory & Physical therapy
• Communication, Speech Therapy and Sign Language
• Apps
• Miscellaneous
• Professional and medical contacts
• USA
• Canada
• Europe
• Australia - Middle East - Worldwide
• Patient care
• Congenital nemaline myopathy recommendations for the care of patients
• Pregnancy care
• Webpage for SLONM
• Sporadic Late Onset Nemaline Myopathy (SLONM) also known as Adult Onset
• Medical contact
• Resources
• Retailers/Suppliers
• Medical - Ventilators, Accessories, Breathing assistance - Masks & head straps - Suction machines - Trache info - Feeding tubes, foods, nutrition, and vitamins - Books
• Communications & oral exercise - Software, smartphone, tablet apps. - Toys & education - Bikes, trikes, standers and therapy equipment - Beds - Car seats - Specialised seating - Body/spinal support - Wheelchairs - Standing & walking aids - Miscellaneous - Vehicles & adaptions
• Travel - Holiday - Insurance advice
• Airlines
• Travel advice or assistance
• Drugs and supplements
• Antibiotics
• Drugs
• Vitamins and supplements
• Publications
• Online
• Books
• Magazines
• Booklet, Pamphlet
• Nemaline News
• NM Newsletter #1
• NM Newsletter #2
• Nemaline Myopathy Foundation Newsletter #1
• Videos
• Melonie's page
• NM Network
• NM Conventions
• NM Convention 2011
• NM Convention 2009
• NM Convention 2007
• NM Convention 2004
• Miscellaneous
• NM Family Meetings
• NM Forum
• Professions of a Nemaliner
• Personal webpages
• Nemaliners in the news
• Nemaliners around the world
• Poetry
• In memory of....